The Starfish ArtistFeb 28, 20226 minSix Years of CDKL5It’s Rare Disease Day. I had never heard of it until my son was diagnosed with CDKL5 Deficiency Disorder. This will be our sixth Rare...
The Starfish ArtistJan 8, 20215 minWelcome Message to New CDKL5 Families{this blog is written by G’s mom} Hello! I understand that your child has been diagnosed with CDKL5 Deficiency Disorder. Even though we...
The Starfish ArtistJul 23, 20204 minHow I Do a Blenderized J-tube Diet for My Son{this blog is written by G’s mom} I fought getting a G/J tube for my son for too long because I thought it meant that I couldn’t blend...
The Starfish ArtistNov 18, 20194 minHow I Do a Blenderized G-tube Diet for My Son{this blog is written by G’s mom} When my son got his g-tube placed in May 2019, I was adamant that I was going to continue to feed him...