top of page
Search


Six Years of CDKL5
It’s Rare Disease Day. I had never heard of it until my son was diagnosed with CDKL5 Deficiency Disorder. This will be our sixth Rare...
The Starfish Artist
Feb 28, 20226 min read


Welcome Message to New CDKL5 Families
{this blog is written by G’s mom} Hello! I understand that your child has been diagnosed with CDKL5 Deficiency Disorder. Even though we...
The Starfish Artist
Jan 8, 20215 min read


How I Do a Blenderized J-tube Diet for My Son
{this blog is written by G’s mom} I fought getting a G/J tube for my son for too long because I thought it meant that I couldn’t blend...
The Starfish Artist
Jul 23, 20204 min read


How I Do a Blenderized G-tube Diet for My Son
{this blog is written by G’s mom} When my son got his g-tube placed in May 2019, I was adamant that I was going to continue to feed him...
The Starfish Artist
Nov 18, 20194 min read


Rare Starfish Collection - On Display at NORD!
{this blog is written by G’s mom} Exciting news! Our Rare Starfish Collection is currently on display at NORD - the National Organization...
The Starfish Artist
Jul 11, 20191 min read


Products I Love
{this blog is written by G’s mom} When you have a typically developing child there are endless resources to explore about what are the...
The Starfish Artist
May 25, 20195 min read


2019 Goals
{this blog is written by G’s mom} 2018 was all about getting out there and sharing G’s art and our story. It was a great year! *We gained...
The Starfish Artist
Feb 8, 20191 min read


Open Studio Hartford 2018
{this blog is written by G’s mom} We had our first show! Art for Hope/Love/Cure was at Open Studio Hartford this past weekend and we had...
The Starfish Artist
Nov 6, 20181 min read


Getting Out There!
We are so excited to share that Art For Hope/Love/Cure is a participating artist with Open Studio Hartford! This is an amazing...
The Starfish Artist
Oct 14, 20181 min read


Our Story
{this blog is written by G’s mom} I have always loved art. Many of my electives in high school and college were art related. I almost...
The Starfish Artist
Aug 26, 20182 min read
bottom of page