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Six Years of CDKL5
It’s Rare Disease Day. I had never heard of it until my son was diagnosed with CDKL5 Deficiency Disorder. This will be our sixth Rare...
The Starfish Artist
Feb 28, 20226 min read
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Welcome Message to New CDKL5 Families
{this blog is written by G’s mom} Hello! I understand that your child has been diagnosed with CDKL5 Deficiency Disorder. Even though we...
The Starfish Artist
Jan 8, 20215 min read
146 views
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How I Do a Blenderized J-tube Diet for My Son
{this blog is written by G’s mom} I fought getting a G/J tube for my son for too long because I thought it meant that I couldn’t blend...
The Starfish Artist
Jul 23, 20204 min read
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How I Do a Blenderized G-tube Diet for My Son
{this blog is written by G’s mom} When my son got his g-tube placed in May 2019, I was adamant that I was going to continue to feed him...
The Starfish Artist
Nov 18, 20194 min read
674 views
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Rare Starfish Collection - On Display at NORD!
{this blog is written by G’s mom} Exciting news! Our Rare Starfish Collection is currently on display at NORD - the National Organization...
The Starfish Artist
Jul 11, 20191 min read
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Products I Love
{this blog is written by G’s mom} When you have a typically developing child there are endless resources to explore about what are the...
The Starfish Artist
May 25, 20195 min read
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2019 Goals
{this blog is written by G’s mom} 2018 was all about getting out there and sharing G’s art and our story. It was a great year! *We gained...
The Starfish Artist
Feb 8, 20191 min read
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Open Studio Hartford 2018
{this blog is written by G’s mom} We had our first show! Art for Hope/Love/Cure was at Open Studio Hartford this past weekend and we had...
The Starfish Artist
Nov 6, 20181 min read
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Getting Out There!
We are so excited to share that Art For Hope/Love/Cure is a participating artist with Open Studio Hartford! This is an amazing...
The Starfish Artist
Oct 14, 20181 min read
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Our Story
{this blog is written by G’s mom} I have always loved art. Many of my electives in high school and college were art related. I almost...
The Starfish Artist
Aug 26, 20182 min read
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